Itsy Bitsy Crazy

Thankfully no big updates here. Maggie has had a mild GVHD rash that is exquisitely sensitive to sun, so she is relegated to long pants/shirts and staying inside with shades drawn for the rest of the summer. She remains a fast breather, but is otherwise doing pretty well. Her platelets finally hit 51 yesterday, so she has officially engrafted them, although I wouldn’t be surprised if they go back down based on the slow speed of rise. The biggest news is that Subdivision #1 of the family has at least one communicable disease – Kaya has a fever and Laney has a cough. So that side of the family is officially quarantined. It makes me extra glad Maggie and I decided to stay at Ronald McDonald House, although it also means that Tommy is exposed and probably shouldn’t visit for a while and I am going slowly crazy singing “Itsy Bitsy Spider.” Yoya and Dylan have visited a few times to allow me some adult conversation, as has Baba and Gammy. Here’s my little warrior in clinic yesterday when she found out her platelets were >50!


4 thoughts on “Itsy Bitsy Crazy

  1. I saw Maggie for a few hours this morning, Saturday, and she did some great walking holding on, ball throwing and rolling (she has a killer throw), some spider crawling with her fingers, some clapping, turning pages of her books, and a few words like “mamamama” and pointing and saying “dat”. “Dat” is her favorite word and we have to guess what dat is! Usually dat is the cell phone or the highchair with food…soon.
    She waves bye bye before I leave the room which is
    my cue to leave!๐Ÿ˜€ and she is learning to blow a kiss. ๐Ÿ˜˜


  2. Hopefully, Maggie’s clinic visits aren’t the endless adventures they were for DS2 after his transplant! Three, four, or five hours worth of labs, exams, and other such procedures. No fun!!


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