Cyclosporine is on the way out.

Some scary, and exciting news. On the heels of Maggie’s adenovirus positive test, one of the possible treatments is to ramp up her immune system. (She pretty much has a complete immune system from a cellular standpoint, it’s just not working because the drug Cyclosporine keeps it in check.) When facing the threat of adenovirus, one possible option is to let the immune system out of the bullpen to go after it.

So, that’s what we’re doing.

What was originally planned as a ramp from 9mo post-transplant to 12 months post-transplant has now been rescheduled for now until 4 weeks-from-now. The correct reaction to that is yoinks!

If we can go earlier than planned, why not always do that? The protocol for children her age calls for the taper to begin between 6 and 9 months. Usually, they start at the back of the range for caution’s sake. You want the new immune system to have plenty of time to get to know the body. Why rush it, right? Let’s all get friendly for a few months. Maggie is now at 7 months, so she’s in the acceptable range to go full throttle. With the adeno out there, it suddenly doesn’t make sense to wait. Let’s rock-and-roll.

That’s why this is scary and exciting at the same time. During the ramp is when we find out how her new immune system and her body will get along together. Will it be ‘happy happy new BFFs for life!’ or will it be more ‘I called the chair by the TV, so get out.’

We’re going to learn the answer to that question sooner than I had emotionally prepared for, which is scary. On the other hand, perhaps we’ll be able to enjoy some of the springtime outside. Screw you fungus.

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1 thought on “Cyclosporine is on the way out.

  1. Thanks for the info! Praying for our Maggie Muffin’s new immune system to get along with her body! She seems good to me. I love her new word, which she says quickly in 5 syllables: No-na-na-na-na. Sounds like Gammy to me! It is quite cute!

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